I found this quote earlier and it sum's up how I have felt since FINALLY having people to share my journey with. Hope you like it!!
“Friendship is born at that moment when one person says to another: "What! You too? I thought I was the only one.”
C.S. Lewis
That is good, I will remember and share. Another one a friend said - tell me about Lupus and how can I help. These friends a few and far between.
How lovely! Good that you appreciate it.
I thought so! x
Agree with you on that Hazel, my friends that could not deal with it have now gone by the wayside, their choice, not mine. But hey, you can't win them all! The friends that have stuck with me are true friends, I don't have many but I would never change them
Im so happy that i found this site as i always find im alone with this condition and that lupus groups (in person) are non-existant and my nearest group being in dudley (i live in kingsnorton) so a but far.
Pleased to hear it Max, I have been living with Lupus solo for many years now, I have never physically met another person that has it, so finding this site was a real blessing to me. Even now there are no groups anywhere near to where I live, would be so nice to just be able to meet up with someone and have a chat. But here I can and I love it
I really don't know how I found this site (not very good with computers)it was accidental or was it meant to be either way i'm so happy I did as I know
Now I'm not alone x
Whatever brought you here Letslaugh, I'm pleased you don't feel so alone, there is absolutely nothing worse. Here we can develop friendships with people that can understand if we are grouchy and fed up without criticising or judging and that is priceless
What a lovely post! It is invaluable❤
I think it is a great way to vent all our frustrations and not on our loved ones. Although they try to understand they will never really "get" what we are going through. I am really lucky to discover that my GP has LUPUS and photosensitivity like me.So she has passed on tips and advice which has been so amazing. It is a pity that we all have to have this disease, but it is a great way to make new friends!!
Wow what a fabulous coincidence I would love to have a GP that really does understand rather than them saying the words, and me feeling like a raving hypochondriac lol! x
Hi, what a great quote and probably the reason why we can all relate to each other on this site. It would be great to meet up with others who have this condition. I have made contact with the NE Group so hopefully this is on the cards for this year. I'm also thinking this years conference would be a good venue to access information/meet others too.
This years conference in Chester should be great. We've got some smashing speakers this year and we're hoping for a great turnout. They're always a nice friendly and laid-back environment. It's a great chance to meet other people with lupus and the staff from LUPUS UK
Thank you Paul I plan to check out the dates on the site and yes I would like to go to this. Chester is supposed to be a nice town for a visit too
I have contacted NE group and there is nothing active in my area at all 
Would love to be able to meet with others... Maybe we could all arrange a day trip to somewhere in the middle 
I know there isn;t any meetings planned at the moment as I emailed the chair recently as members have been ill Yes it would be fab to meet up with others. Whoever is up for it then I would like that. We could pick a venue suitable to us, Even a nice coffee place where we could meet up and have a hot drink/cake. I'm up for it and if we could get a few of us together then that would be good
Paul, where do I find the details for this event? I also thank you for watching over us 🌻
Hi Ladyuponthelake . Are you asking about the conference in Chester? If so, I'm afraid this thread is from over five years ago. However, if you are interested in events in the North West, please visit northwestlupus.org.uk/
Thank you for your reply. How silly of me not to have noticed the dates.
I'm actually in the South West of England, Devon based.
Lesa 🌻
OK, well the Devon & Cornwall Lupus Group is very active and organises lots of meetings. You can find information about them at devonandcornwalllupusgroup....
We will also be having our Information Day and AGM in Devon in May 2019. More information about this will be made available on here in the future, as it becomes available.
Thank you very much Paul. I'll have a look.
I like it!
Pleased to hear it
Lupus Awareness Month....what can we do? ☀️
Can anybody relate? How long did it take to be diagnosed?
Can we ask for steroid injection?
