Something we can all relate too...

[Silvermyst]

I found this quote earlier and it sum's up how I have felt since FINALLY having people to share my journey with. Hope you like it!!

“Friendship is born at that moment when one person says to another: "What! You too? I thought I was the only one.”

C.S. Lewis

[Lily28]

You are not alone ..

[Silvermyst in reply to Lily28]

And that is a lovely feeling

[Purpletop]

How clever!

[Silvermyst in reply to Purpletop]

Very much so

[Slg352]

What an apt quote!

[Silvermyst in reply to Slg352]

Agreed

[poodlegal]

brilliant x

[Silvermyst in reply to poodlegal]

Agreed

[hazelHollingsworth]

That is good, I will remember and share. Another one a friend said - tell me about Lupus and how can I help. These friends a few and far between.

[Jaxqueline in reply to hazelHollingsworth]

How lovely! Good that you appreciate it.

[Silvermyst in reply to Jaxqueline]

I thought so! x

[Silvermyst in reply to hazelHollingsworth]

Agree with you on that Hazel, my friends that could not deal with it have now gone by the wayside, their choice, not mine. But hey, you can't win them all! The friends that have stuck with me are true friends, I don't have many but I would never change them

[Flippityfish]

Hahah great!

[Silvermyst in reply to Flippityfish]

Yes, I thought so

[max1979]

Im so happy that i found this site as i always find im alone with this condition and that lupus groups (in person) are non-existant and my nearest group being in dudley (i live in kingsnorton) so a but far.

[Silvermyst]

Pleased to hear it Max, I have been living with Lupus solo for many years now, I have never physically met another person that has it, so finding this site was a real blessing to me. Even now there are no groups anywhere near to where I live, would be so nice to just be able to meet up with someone and have a chat. But here I can and I love it

[letslaugh63]

I really don't know how I found this site (not very good with computers)it was accidental or was it meant to be either way i'm so happy I did as I know

[letslaugh63 in reply to letslaugh63]

Now I'm not alone x

[Silvermyst in reply to letslaugh63]

Whatever brought you here Letslaugh, I'm pleased you don't feel so alone, there is absolutely nothing worse. Here we can develop friendships with people that can understand if we are grouchy and fed up without criticising or judging and that is priceless

[Ladyuponthelake in reply to Silvermyst]

What a lovely post! It is invaluable❤

[MaximumRide]

I think it is a great way to vent all our frustrations and not on our loved ones. Although they try to understand they will never really "get" what we are going through. I am really lucky to discover that my GP has LUPUS and photosensitivity like me.So she has passed on tips and advice which has been so amazing. It is a pity that we all have to have this disease, but it is a great way to make new friends!!

[Silvermyst in reply to MaximumRide]

Wow what a fabulous coincidence I would love to have a GP that really does understand rather than them saying the words, and me feeling like a raving hypochondriac lol! x

[mstr]

Hi, what a great quote and probably the reason why we can all relate to each other on this site. It would be great to meet up with others who have this condition. I have made contact with the NE Group so hopefully this is on the cards for this year. I'm also thinking this years conference would be a good venue to access information/meet others too.

[Paul_Howard Partner LUPUS UK in reply to mstr]

This years conference in Chester should be great. We've got some smashing speakers this year and we're hoping for a great turnout. They're always a nice friendly and laid-back environment. It's a great chance to meet other people with lupus and the staff from LUPUS UK

[mstr in reply to Paul_Howard]

Thank you Paul I plan to check out the dates on the site and yes I would like to go to this. Chester is supposed to be a nice town for a visit too

[Silvermyst in reply to mstr]

I have contacted NE group and there is nothing active in my area at all

Would love to be able to meet with others... Maybe we could all arrange a day trip to somewhere in the middle

[mstr in reply to Silvermyst]

I know there isn;t any meetings planned at the moment as I emailed the chair recently as members have been ill Yes it would be fab to meet up with others. Whoever is up for it then I would like that. We could pick a venue suitable to us, Even a nice coffee place where we could meet up and have a hot drink/cake. I'm up for it and if we could get a few of us together then that would be good

[Ladyuponthelake in reply to Paul_Howard]

Paul, where do I find the details for this event? I also thank you for watching over us 🌻

[Paul_Howard Partner LUPUS UK in reply to Ladyuponthelake]

Hi Ladyuponthelake . Are you asking about the conference in Chester? If so, I'm afraid this thread is from over five years ago. However, if you are interested in events in the North West, please visit northwestlupus.org.uk/

[Ladyuponthelake in reply to Paul_Howard]

Thank you for your reply. How silly of me not to have noticed the dates.

I'm actually in the South West of England, Devon based.

Lesa 🌻

[Paul_Howard Partner LUPUS UK in reply to Ladyuponthelake]

OK, well the Devon & Cornwall Lupus Group is very active and organises lots of meetings. You can find information about them at devonandcornwalllupusgroup....

We will also be having our Information Day and AGM in Devon in May 2019. More information about this will be made available on here in the future, as it becomes available.

[Ladyuponthelake in reply to Paul_Howard]

Thank you very much Paul. I'll have a look.

[megs_tom]

What a beautiful quote xxx

[Silvermyst in reply to megs_tom]

Glad you like it

[flutterby]

I like it!

[Silvermyst]

Pleased to hear it