Hello! I started with chronic fatigue back in June, no other symptoms other than headaches and pain behind my eye. These flare ups kept happening and by July my wrist was in a bandage because it started hurting.
I mainly get the pain on the right side of my body in my arm, wrist, hand (sometimes feels numb) my knuckles (feel swollen but not), my hips (they feel achy) and my right calf goes very tight. I get a tight neck and back. but I wouldn’t say is constant pain, it’s like episodes of up to an hour then stops. A lot of the time it feels like nerve pain. Then the next episode will hurt somewhere else.
My hands have started randomly feeling like they’re burning but they’re not hot to the touch. My feet feel like they’re in ice buckets.
I had a flare up last week and had an episode where I got pins and needles down one side of my body and in my head and down my face. The fatigue leaves me bed bound.
Before each flare by glands swell and I feel like I’m getting the flu.
There are some weeks (rarely) I have no symptoms and my energy levels are not like they ‘used to be’ but I’m able to do everyday tasks. Some days I can’t move off the sofa.
My rheumatologist has said he thinks it could be early lupus or fibromyalgia, but my question is: can anybody relate to these symptoms, does it sound like Lupus? because even the rheumatologist wasn’t sure.
It definitely flares up when I’m anxious or if I feel depressed. No rashes, ana 100, but white blood cell count keeps dipping
Thank you x