Some good news for once! Ooer mrs!

Wow, I am totally shocked and reeling. Wanted to share this with you guys as it's nice to sometimes see a light at the end of the tunnel, and if it can happen for me then surely it can happen to others.

Basically I had my daughter 6.5 yrs ago and became extremely ill afterwards. Took 2.5 yrs to diagnose sle, sjogrens, fibro etc and in that time we lost our house, got into debt, I put on 6 stone and we had to move into a city where I have become VERY isolated and miserable. On the plus side my husband and daughter have been fab, and I have a handful of friends who have proved to be worth their weight in gold repeatedly.

I am on Microphenalate, pred etc and nothing seemed to be dampening down the sle. Then in Sept 2011 I started 6 infusions of cyclophosphamide (chemo drug). It has taken me the better part of a year to physically recover from the chemo, but finally I feel stronger and am having more good days than bad days.

ANYWAY (thanks for your patience so far!), today I saw my rhuemy and he said that the sle is finally under control, and he would even support me planning and trying for a baby again!!!! OH MY GOODNESS!!! I genuinely thought we would never be lucky enough to ever even try for another child and now I feel both elated and terrified.

He bought into the appointment, an obstetrician who is specialising in pregnancy with lupus patients, and she was incredible supportive, encouraging and informative. It was all a bit too much for me to take in, so I just cried and shook my head in wonder (I must have looked like a right weirdo!!). Then I left quite quickly to call my husband, who also spent some time shaking his head in wonder and shock!

I don't know if we will try for another kid, after having 5 miscarriages previously, but the thought that I may have progressed physically enough for it to be a possibility is incredible!

So please do not give up hope. Two years ago I wouldn't have believed I could have had an appointment like today's, but it is possible. Obviously I have been left with arthritis, dodgy liver and ongoing pain problems, but that is a small price to pay to think I could have a ........future. I never thought I would see that word in a positive way again.

:-)

15 Replies

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  • What wonderful news!! Well done, your poor body fought and fought to get you here, how amazing! You give me hope, thank you for sharing this with us and all the best in trying for a new baby!

  • Bless, really chuffed 4 u, always nice 2 hear when things r going well 4 some1 :0)

  • think this is wonderful news and wishing all the happiness and luck in the world whether you try for baby or not x

  • Wonderful news - a boost for everyone! Thanks x

  • That is wonderful news - a boost to make everyone smile :)

  • God Bless

  • Always good to hear good news!

    Hope it continues! Wish you all the best! xx

  • What amazing news, brought a smile to my face, I am so pleased for you :)

  • So pleased for you, love and hugs xx

  • Fantastic news - congrats. With 5 mc's it would be worth having a check for Antiphospholipid Syndrome (sticky blood) - it's associated with Lupus and other immune disorders and is a big cause of mc's (we had 3 before diagnosis)

  • That is super, so good to hear. Long may you continue to do well xx

  • Fanflippintastic ;))))))))))))

  • All the very best of luck to you and your husband :) xx

  • Congratulations Cobbers. Thanks for sharing your news - it is so nice to hear such a happy story! Good luck to you and your family - whatever size it ends up! :)

  • That's great news! Good luck with everything, whatever your decision :)

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