Well I started with chest pains and difficulty breathing a full 12 months ago now, My first CT scan showed a partial collapsed lung lots of grey shadows (Consultant said he didn't know what that was (?!)) and lots of white flecks and 'blobs'. I have since had two further CT scans and my chest consultant is happy to sign me back over to the rheumatologist for his care alone. I am still suffering with shortness of breath and lots of pain in my chest and back over my right lung. I had a distinct impression that the chest consultant thought that I was complaining about nothing so they put one of the oxygen measure 'things' on my finger and my resting oxygen level was 96, I then went a walk up and down the corridor and my oxygen level fell to 91 (which according to the british lung foundation site is pretty low). So, I am now going for a VQ scan-anyone had one of these?, incase I have blood clot(s) on my lung, if not then i'm back with the rheumy as the chest consultant doesn't seem to want to know!!
This is so not normal as I am so limited in what i can do before gasping for breath. I am so fed up with it all i really am, all I want it to be able to do things again.