Have just come on to have a bit of a rant really as I am thoroughly fed up!! I still have no diagnosis, the last time I saw the consultant he said its probs just 'post viral syndrome'. Offered me no advice other than to 'pace it'. I actually am a very positive person and my friends have always said that I don't look ill because I keep smiling through it all.
However, right at this moment I just feel like I'm onto a losing battle. I live on my own, have had very little social life this year because of all of this. I'm due to go on holiday to Ibiza in less than two weeks and my friends keep saying how excited they are etc. I just feel confused because I'm looking forward to relaxing with my friends but deep down I know I'll be in pain, not feeling 100% and I'm absolutely dreading the travelling there and back. Does anyone else feel like this? Like in your head you want to be around people because you feel so bored etc, but because you feel physically sick / in pain you tend to avoid people? This is where I'm at at the moment.
Even in terms of work, I was managing a few hours each day, but then over the last week I haven't been in because I'm sick of the constant struggle of trying to get enough energy, getting to work, feeling so sick I have to sit in the toilets for 30 mins. It sounds like small things but it all just feels a battle.
And I feel like nobody in the medical profession is listening. My consultant said in July to treat it as post viral syndrome, but that he'll see me again in October but if anything happened before then to email through.
Well the nausea thing has been affecting me but also last week I had such severe foot pain that I couldn't walk, I emailed them last weds, and I've had nothing back. Not even an acknowledgement.
Anyway, if anyone has any advice / tips to make me snap out of this that would be good, or if anyone would like to join in my rant!!!!
Lots of love