I was just wondering what peoples attitudes are towards you and your illness. Have you found friends / family to be supportive or have you had many negative reactions?
As some of you may have read in my previous posts, I have recently been on holiday in Ibiza. My gp still thinks there may be something autoimmume going on but at the moment I'm diagnosed with possible post viral / chronic fatigue syndrome and I've been told to pace it. I'm ok with that and am happy to pace it.
However, on my holidays my friends boyfriend kept asking why I wasn't going to a club until 7am!?! He said I'm just an old granny! And then last night, bearing in mind I had to catch a flight at 3am this morning, I was dragged round Ibiza because my other friend wanted to meet some guy in a bar and the others wanted to go so it was either that or stay in the hotel by myself, so I went but I just felt so exhausted! My friends boyfriend then decided to shout at me in the club asking how on earth I could be THAT shattered etc etc. I just felt SO horrible (didn't cry though)!
I just felt that my friend and boyfriend just got sick of me being exhausted and in the end I couldn't wait to get home. My friend had even said before we went that she thought she also had pvs a while back, but that in the end it was a mental thing, and she needed therapy and to just get on with things! So basically they think it is all in my head and therefore I think they thought if they could drag me out in ibiza I'd snap out of it.
Luckily, these are the only people that have been strange about this. I have no idea why but it has made me really consider our friendships.
Just wanted to rant and also see if anyone else has had similar experiences?
Lots of love