Hi, I have MS, I was dx when I was 28 - now 37. It is a definite diagnosis. I had what I thought was a killer MS relapse 2 and a half years ago, and have been in a wheelchair ever since. I had a CT scan, told no, not a stroke and home I went packed full IV of steroids.
Then, last October - I'm now 37, I had an arterial clot in my leg, almost a full amputation. I have since had 3 more aschemic attacks and two lungs filled with blood clots.
So, this has been one event after another since October. I was still on bed rest for the PE's when I was ambulanced to St Thomas's for another clot in the leg.
I had an MRI at St Thomas' which showed that the MS relapse, that the paramedics believed to be a stroke, but was not picked up by the particular dr I saw, was, indeed a stroke.
Is it usual to have so many clots in such quick succession? Is it unusual that my first clot was a stroke, age 33?
I suppose I'm asking the impossible. I'm looking for a prognosis. I'm really scared, but I can take on anything if I know what it is.
Also, I'm normal weight for my height, but needing 12mg warfarin and 2 injections per day of Clexane just to keep my INR up. I have to have an INR of 3 - 4. I have been put onto a low dose statin even though my arteries are not firred up.
And the MS marches on obediently with this new APS.
Thanks all for listening.
Lastly, every nurse, doctor, pharmacist, dietician, physiotherapist, neurologist......... that saw me at St Thomas' were the kindest, most professional people I have ever met in my life. Thank you all, if you ever look here.