I have suffered from bouts of diarrhoea for years, way before my diagnosis in 2013 with SCLE.
I have been on hydroxy for 3 years and MMF 3G a day since July. But diarrhoea started before then.
The last few weeks have got worse. Today in particular. I woke up at 1.30am for the loo and have been 6 times since. I am so sore I could cry.
I don't feel sick. I don't have a bug.
When on steroids this symptom got much better.
I have a GP appt for Monday 29th to discuss this. Had to book 5.5 weeks in advance to get appt with GP of choice. Was going to discuss this with her then. Not sure I can wait now.
Anyone got any ideas? On cause or pain relief? Or anyone had this investigated? I think it is lupus for me and maybe the meds are making it worse?!?! I'm desperate.