I have had lupus for 21 years now but changed GP in the last five years and consultant. I never get to see my new consultant as the hospital is so busy and the GP said my complement tests are fine so I don't have to. My ANA is still positive so I don't really understand this. I have been deteriorating in health for three years. Home based for work as I have bad days every other day, my legs won't work regularly, constant stomach upsets, severe dizziness and disabling tiredness. So does anyone know what the complement tests are and why if they are fine it means I don't have to be seen. I feel I will end up losing everything if my health continues to deteriorate as much as it has been. My last consultant had been brilliant but now I am outside his area. He used to insist on seeing me every three months and now I have not seen a consultant for 18 months. On top of that my GP suggested reducing my steroids despite my consultant doing a test with me two years ago that showed my adrenal gland isn't working without them. Any advice would be much apprecaiated as I feel pretty scared as things keep getting worse.
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