I was given a diagnosis of lupus approx 2 years ago. Initially I was under the care of an immunologist, then as things progressed I was referred to rheumatology. I had my 2nd appt at rheumatology a few days ago. I was told my positive blood tests are now negative and my DNA shows I do not have lupus. This is obviously great, however, I have many health issues many of you will be familiar with. I have been told my Vit D and phosphorous levels are low so have been started on Adcal twice a day. I am to return for another appt in 4 months time and am having a bone density scan in the meantime. On the referral form for the latter, CTD was listed as a diagnosis but the consultant didn't mention this to me. My employers have made reasonable adjustments due to my lupus diagnosis and general increased sick time. I'm now really worried about how to explain I don't have lupus at all!!! Any advice about CTD, how to address this change in diagnosis with my employer??
Last edited by Petey
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