I have just been seen at Guys Hospital....I did not get to see the consultant I wanted (experienced in seronegative lupus) and I have been Let down again because blood tests and back all negative. This is the fifth rheumatologist I have seen who refuses to believe I have lupus despite all these symptoms;
Muscle pain and weakness
Headaches and memory problems
Facial rash (permanent)
Frequent sinus infections
Cold fingers turning pink/purple in the cold
Unable to regulate body temperature
Thigh muscles swelling
I'm sure I have forgotten a few but that's most of them.
I am just so fed up of being in pain every single day and not getting answers as to why! I have been on Hydroxychloroquine for a few months which helps a lot with my joint pains so if this is working it's obviously autoimmune. I just want someone to say yes I agree it is lupus/ Sjögren's or whatever and one day my blood tests will catch up!