Hi all not sure if this is the right place to post but don't really know where else to turn, sorry if it's wrong.
As some of you may know from my previous posts I have been undergoing tests for the last 2 years now to figure out what's going on currently only diagnosed with vitamin d deficiency, functional neurological disorder, fibromyalgia and colloid cyst in the middle of my brain.
I've been struggling with numerous symptoms since having my 2nd child such as pins and needles, joint pain, butterfly type rash on face, migraines, petichae, brain fog, canker ulcers, spasms, twitches just to name a few. During all this I have seen numerous specialists, gasteonologist believes fibro is misdiagnoses because the only thing showing up in bloods during all this time was liver enzymes extremely high consistently nothing resolving them and nothing showing on liver biopsy. Fast forward to this year where I seen a new rheumatologist a couple of weeks ago she sends me for bloods and urine test stating that if these come back normal she will trial me on steroids to see if it resolves liver issues and then be able to confirm its autoimmune based on that whilst still trying to figure out what it is. Then I get 3 letters this week one to state there are red and white blood cells in my urine with no infection shown, the second states a nuclear bone scan appointment and the third a new appointment with previous rheumatologist which I found weird due to me seeing a rheumatologist 2 weeks ago so I rang them to ask why I was seeing them again so soon and it turns out now that something abnormal has shown on my bloods.
Now granted this was something I wanted to be able to have a reason for all my symptoms however my anxiety and stress is through the roof whilst waiting for this appointment to confirm exactly what is now going on, sorry for the long post/rant thank you if you got this far I'm not quite sure how to feel or what I'm looking for it's just a lot. Thanks again ๐