SOooo nearly a month ago my thoracic consultant decided after my full history to test me for Lupus - because my lung problem didn't tick the boxes of anything else. I have nearly every single symptom on the list that doctors look at and many that aren't on, and Alopecia, Raynaud's which has been witnessed by GP, EDS and endometriosis which I've had for many years.
To cut a long story short, my lung specialist ordered the lupus related bloods, looked at them, decided I needed to see a Rheumy asap, so said he would forward them to my GP so they could refer me. This was nearly a month ago. The letter and results have still not arrived at my GP, I've been calling three times a week and saw the GP ...again!... today.
She point blank refused to refer me to a Rheumy until she'd actually SEEN a positive ANA result. As far as I am aware from reading up, ANA isn't even positive all the time? And there's even serum negative lupus! Why is she refusing to refer me until these 'lost' results get found?! I'm really struggling and beginning to lose hope of ever getting help
It's already been such a long battle (from the age of 12 and CFS diagnosis to here) and I wasn't even flaring when I had the tests so I'm really not hopeful about the results. I'm getting more and more exhausted and ill and really don't know what to do now..