I noticed a question recently (by TeganSara) about whether anyone had tried a vegan diet or going chemical free to treat lupus. In the comments someone recommended reading the book THE LUPUS RECOVERY DIET by Jill Harrington, so I bought it.
Having just read it, I am starting to feel hopeful that changing my diet will help reduce inflammation in my body. I was dairy free for nearly 2 years (part of my recovery from ME diet in 2006!) and I definitely improved and had more energy and less pain. Then I relaxed my diet, thinking I didn't need to do it anymore, and that's when it all got so much worse and I was diagnosed with Lupus! According to the book, animal proteins pass through the gut wall and the body attacks these proteins and our own proteins (very similar) causing inflammation. Apparently this is all due to 'leaky gut' -that I was actually trying to repair before in 2006 with that previous diet!
I have designed a little chart for me to fill in each day detailing the amount of sleep, activities, food, and symptoms, which I can look back through to see whether there is any connection between what I eat (and exercise and sleep) and my symptoms and mood. I am expecting to see a connection -and therefore I will then go on an elimination diet to exclude those foods. I am also starting to eat more fresh salads from my garden, and do more exercise. I hope that I can share some positive results with you.
My symptoms are really bad at the moment with lots of pain in my arms muscles and tendons, all my joints are grumbly and painful, I have brain fog, dizziness, and weakness and exhaustion. I haven't been able to get on with any work for ages, and been in bed mostly for the past few months. The next step might be steroids, but I want to see if I can achieve some results with diet before I take any more drugs. I'll keep you posted!