There seems to be quite a few of us for whom taking some of the medication is difficult or unwanted (for a variety of reasons) and there have also been a lot of questions on this blog about alternative ways to help cope with lupus involving diet, even for those also taking medication.
I am wondering if there is a website anywhere which simply lists those foods/supplements which either people through personal experience have found helps their disease, or researchers have shown can help us fight it. There are lots of snippets of dietary advice regarding immune conditions covering literally thousands of websites, but it would take months to trawl and read through them all to compile a decent list for lupies. For instance foods that aggravate and foods/supplements that seem to help. We are all individual and what helps one does not help another, and I would be the first to say we should follow our doctors advice, but if you have allergies or react badly this is not always an easy option.
Does anyone know if such a website/organisation exists ?. Really I guess I may be asking the impossible, just a simple list with a very brief explanation would be brilliant. If I can help my disease in any way by changing what I put into my body or avoiding certain foods that aggravate lupus, it would help me feel I am taking a little bit of control of the disease and doing the best for it. I know some think that diet/supplements play no part whilst others are quite convinced it does. I guess I am one of the latter. I would be interested in hearing others views as to whether there is a foodie list anywhere or even whether one would help ??.