I was wondering if anyone could help me? I have been allergic to the sun for three years but whenever I returned home from holiday and spoke to a doctor I was never taken seriously, instead told I must be allergic to the sun lotions I was using or suffering from heat rash. I have spoken to te doctors in the past about my extreme tiredness and asked them to check my thyroid in case it was that as my mum and grandma both have an under active thyroid. The doctor refused to do any blood tests though and almost laughed at my request. In November however I developed a rash all over my body and ended up with joint so painful I couldn't stand up unaided for 4 days (5 days before starting rehearsals for a 5 week run of a musical). I went to my gp in a panic and saw a different doctor. He was absolutely fantastic and took it do seriously. He immediately sent me off for blood tests. I managed to battle through my show on adrenaline and thankfully the joint pain went away. My gp surgery made me wait until January for my results so I assumed they hadn't found anything wrong, but when i went back I was told I had positive ANA and a few other things which point to lupus. This was three days before my 22nd birthday and 12 days after I got engaged. I then had to go through a 6 week wait to go to lupus unit where I was told last month i do have lupus and since then I don't know what to do with myself. I have given up my job as a musical theatre actress despite all my hard work and being so close to achieving my west end dream. Physically it was too much for my body, and the lifestyle was causing too much stress on top of my daily life. I feel guilty my fiancé has been burdened with my lupus so young and everything is too much. I have to wait until June to get all my results back from hospital, and I still haven't been sent the letter to take to my opticians before I can start medication. I feel like my whole life is on hold. I'm trying to work out a new career but I'm so tired at the moment, I have barely any money coming in so my stress levels are so high. I don't know what to do, and most my friends have got their own troubles at the mo or are trying to do dissertations at Uni so I don't want to burden them and I'm not good at talking about feelings, but I don't want my fiancé and my mum to have to take all the burden of this. Sorry to ramble I just wondered if anyone had any advice as i know you've all been through this horrible acceptance stage. Thank you.
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