So no diagnosis yet. I posted on here a few months ago and i am only just going to the doctors to discuss this as unfortunately my endometriosis kicked up a massive fuss so I have been in and out of hospital with that.
I really want my doctor to take me seriously about the possibility of Lupus. I just need to know what to say, how have you pushed for a referral to a rheumy? I have only ever seen one about 3 years ago for suspected RA as it runs in my family and I had joint pain, but no damage was seen.
Well my joint pain is back and really bad, in my knees and wrists especially. I had been feeling better since summer has passed ( I was really unwell and the sun was making me very ill and I had rashes on holiday) but with the cold weather it has all flared up again.
My symptoms as well as joint pain are:
Headaches with dizzy and issues with artificial lighting at work ( This has been an on and off issue since falling ill in the summer and my doctor referred me to the neurologist who has diagnosed severe migraine disorder. I don't agree)
Chronic fatigue (but my doctor is happy that it's just down to my Endometriosis)
Wheezing and coughing - I got told it was allergy induced asthma but had no proper test but given inhalers. However this came on quite suddenly a couple of years back and since then whenever I get a bad cold I get a really severe chest infection that sees me in A&E or walk in centre - always needing Steroids. The steroids make me feel TONS better and it is the only time I feel normal for a week or so and then back to tiredness, aching, fever etc.
Also my sister has it.
Autoimmune diseases run really heavily in my family.
How do I make my doctor listen when he thinks that there is a reason for most of my symptoms. I also suffered anxiety and depression, not so much anymore....I don't want to come across like I'm a hypochondriac.