How can diagnosis be so hard...: I can't understand... - LUPUS UK

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How can diagnosis be so hard...

missymystique profile image
5 Replies

I can't understand that I am being told I am ok after many appointments with many rheumo's, internal specialists, gp's and everybody is telling me to see a psychologist.

My symptoms are:

-positive ANA (became positive lately)

-hair loss, extreme

- Raynaud's

-chest pain

-night sweats

-hashimoto thyroid

-skin rashes with sun

-butterfly rash (I was told this could be rosacea)

-numbness and tingling hands and feetl

-livedo reticularis

-chilblains lupus (a skin disorder not a type of systemic lupus)

They won't diagnose me because I don't have joint pain. I am just wondering if there is anybody out there without joint pain.

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missymystique profile image
missymystique
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5 Replies
misty14 profile image
misty14

Hi missy mystique

Don't give up the fight, you are obviously I'll

It can be a long battle to diagnosis but you will get there.X

missymystique profile image
missymystique in reply tomisty14

thank you xx

onamission profile image
onamission

Hi missymystique I have just read your symptoms which I have most of them but I notice you have pins and needles in the hands and feet. I'm going in hospital on Tuesday to have a operation on my arm because of this.

I saw a guy who did blood tests on me I was covered in bruises and had the rash on my face when I saw him but because my bloods came back ok he didn't know what it was then asked me if I take steroids I have COPD and he put all my symptoms down to the steroids.

missymystique profile image
missymystique in reply toonamission

good luck with the operation!

onamission profile image
onamission

Thank you

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