White fingers : Hi just wondering if any one else... - LUPUS UK

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White fingers

Diannecat profile image
16 Replies

Hi just wondering if any one else gets white fingers . I used to get it now and again but recently it's most of the time .

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Diannecat profile image
Diannecat
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16 Replies
Treetop33 profile image
Treetop33

I do in the cold. Isn't it Raynauds?

Diannecat profile image
Diannecat in reply to Treetop33

I'm not sure I was wondering if it's a symptom of lupus

Sara_A profile image
Sara_A in reply to Diannecat

Lupus Raynaud's

Sara_A profile image
Sara_A in reply to Diannecat

I've also just bought some hand warmers as I can't go onto the medication for Raynaud's as I'm on beta blockers so it's contraindicated so my rheumatologist suggested hand warmers so I've bought some that I can put into my mittens for when I go on the school run. I also have some arthritis gloves that I wear round the house during the day and sometimes at night they are very good

Confused01 profile image
Confused01 in reply to Treetop33

Raynauds usually red fingers (often bluish tinged) I believe.

Treetop33 profile image
Treetop33 in reply to Confused01

I'm not sure. I do get the white numb finger thing in my two index fingers when they get cold though.

Chris21 profile image
Chris21

Hi, yes, same problem it hasn’t been so bad as this year, it’s gradually starting to get more and more where the tips are going various colours and I’ve started wearing gloves around the house. Which helps.

It’s not enough a problem yet to go to the GP but I do already have a diagnosis of raynaulds. Do you have a diagnosis? If not might be worth getting it checked 🙂

Diannecat profile image
Diannecat in reply to Chris21

No I've never seen about it

Chris21 profile image
Chris21 in reply to Diannecat

there’s many auto immune diseases that overlap. But you can have raynaulds on its own. It’s a problem with circulation not always getting around the body as it should. There’s a leaflet on the lupus. Org.uk website might be worth a look and mention it to gp/consultant next time you speak to them .

JCZW profile image
JCZW

HiI also get this but it's Raynaulds. Just bought myself some lovely thermal gloves.

CavendishCool profile image
CavendishCool

Sounds like Raynauds to me. My Nana had it and I have a friend with it also. I believe it is categorised as an auto immune, but I haven't checked Dr. Google. You could check back with family members to see if anyone else has anything of the sort, but I'm not sure how useful this will be. Today I have a brain of fog, so if this doesn't make any sense at all, you have my permission to ignore the above. The only thing I would say is that it is more than (old lady) "cold" hands! (My Nana's GP told her that). Yet my friend was part of a major London study specifically for Raynauds. Namaste peeps. 🙏

Partner20 profile image
Partner20

This could be Raynaud's. If you have an autoimmune disease such as RA, lupus or scleroderma, you are quite likely to develop secondary Raynaud's alongside it. This condition affects the circulation of blood to the extremities, and can result in toes and fingers not only turning white, but purple, blue and black, and can be painful, too. Primary Raynaud's, which I and other members of my family have, usually starts at an early age and is usually genetic. There are treatments available to improve blood flow, so discuss this with your GP if it becomes concerning. My fingers are now becoming purple and numb simply because I am touching my phone, which is cold!

Poshcards profile image
Poshcards

sounds like Reynauds x

Stills profile image
Stills

note my diagnosis is Adult Onset Stills Disease which for me manifests as rheumatoid disease. Yes I get white fingers especially if I get cold, regardless of ambient temperature , they stay white for about an hour, recovering after exposure to heat resulting in extremely painful tingling for about 20 minutes. It’s quite regular but appears harmless.

Wytchylady profile image
Wytchylady

Hi. Yes I have Raynaud's. It's not uncommon in people with Lupus. It was diagnosed with it before getting an SLE diagnosis.

It's mostly my fingers but also in my toes.

Make sure to wear gloves in the colder weather.

Regards

Sue

Brychni profile image
Brychni

yes - it's Raynaud's. Can be a symptom of lupus. Mine has improved, alot since being on hydroxychloroquine.

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