I've raynauds my fingers tips are all wrinkled like I've been in the bath for a long time , severe hair loss , burning tingly feeling in my hands and lower legs really dry eyes .. I'm on steroids atm qovic malaria tablets and adalat retard 10 mg but nothing work , told the rheumatology just order bloods test but usually they come back normal I think they need to do different tests .. I think nerves damage or something similar , lost weight and my knees are big like 'housemaid' knees, my shoulders are disappearing and one is lower and smaller than the other ( osteoporosis) I'm having a bone density test next month , tops don't fit propaly they always hung one side. I had enough , I'm only 46 and lupus ruined my life , work, relationships , I can't do anything anymore .. What's the point! Sorry for the rant . Thank you. Maria 😕
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