Hello from a newbie

[mudglutton]

Hi all! After 15 years of Lupus, I've decided to join the forum. I'm one of the 10% males who have the disease. I'm not sure what I expect to get from the forum, but I'm hoping I'll find both something to give and something to take.

[whisperit]

Welcome mudglutton!

[EOLHPC]

glad you found us! 👍

[Turquoise-1]

Hi 👋,

I’ve learned a lot from this Forum & the knowledgeable members; It’s a valuable place for support & information 🙂

[MusicalFurbaby]

Hi mudglutton, welcome and thank you for posting. We need more of the male perspective on lupus, so I am looking forward to hearing more of your experience. Please feel free to post/vent/ask questions here anytime, this is a friendly and supportive bunch of people who understand! 🌻🌈✨

[Riselikeaphoenix_123]

Hiya and welcome. Do you get itchy after going in an indoor pool, steam room or sauna etc? I have Lupus and used to go for Spa days etc and now I can't even go for a swim at the gym because I get unbearable itching under my skin in my whole body. I will get a rash if I scratch but then it gets worse. I am on Hydroxychloroquine and fexofenadine. I have to put Alo Vera and at times Sudocrem on but obviously I can't go out looking like a ghost or snowman! Any ideas or advice would be great 🤗.

[Looplylady in reply to Riselikeaphoenix_123]

Yes I have a similar problem I usually take a allergy relief tablet ( cheap )from the pound shop, it seems to work, plus cetraben is very good.....I got my on prescription from the doctor.

[Riselikeaphoenix_123 in reply to Looplylady]

Hiya, I love your nickname ☺️. I also take hay fever tablets and have tried the Cetraben and Dermacool 0.5%,2%and 5%. Maybe because I have cuteanous Lupus erythematous. The skin Lupus that it's worse with itching? I am glad that yours helps. Have a great weekend. X

[mudglutton in reply to Riselikeaphoenix_123]

Not a problem I've had.

[Looplylady]

Welcome newbie......it will be interesting to have a male perspective.Don't be scared we are very friendly

[SufferingMike21]

Hi Glad you have joined I'm one of the 10% males.I have asked questions and had such great replies and support.

Also I've answered people's questions so hopefully you will find useful.

Mike

[dg70]

Hi and welcome. Hopefully we are not too female centric here but most of what we suffer is common to all. There seems to be always someone who has the same issue as me and it helps that there's somewhere you can throw a question out there and you get many replies. No one knows autoimmune like other autoimmune sufferers and sometimes its a bit of a lottery as to whether our medical professionals know enough.

[Betty909090]

Hi there,

I’m not so sure that it’s only 10% of males that suffer lupus?

That’s a statistic that’s often quoted but one wonders whether it’s actually wrong and needs revision for the following popular reasons:

*Men do NOT like revealing/talking about health problems say all the medics but..?🧐

*Perhaps men feel excluded because of this stat?

I feel there are loads of men out there who find it difficult to talk about lupus and AI generally?

Don’t be gagged, hindered or feel gagged about this stat because it could turn out to be wrong?!

We here talk openly and freely about lupus related matters. WELCOME!

Regards

[mudglutton in reply to Betty909090]

Hi Betty. I suspect you're right. There seems to be an ignorance of SLE in society in general and in men particularly. Often, if I declare my Lupus to women, I get interest and empathy, yet when I declare it to men, often the response can be best described as "Huh? So what?" TBH though, this is probably true of many things and AI/SLE awareness seems to be improving rapidly and I must admit, I had never heard of Lupus until I was diagnosed with it...

[CecilyParsley]

Hi mudglutton and welcome. Loving the name. This is a lovely friendly group where you will get advice, comfort and a giggle along the way 🙂

[ijeasike]

Welcome 👍

[Poshcards]

Hi, 'newbie' its a great place to be, welcome xx

[SurferGuy]

Welcome to the forum my fellow 1 in 10'er 👨‍🦰 And not only a fellow 1 in 10'er, but also a 15 years diagnosed'er.

This is a top forum with top members who offer top support and top advice. Can't top it 😊

[svfarmer]

hi mudglutton and welcome to the forum x