Hi guys I'm new here and can't thank the people who replied to my first post enough This is a great site !
After being told two weeks ago that I tested positive on the test I'm waiting the next three months to hopefully get some answers .
I'm putting all the pieces together and wondering is this why I've been suffering so many differnt issues.
I have been really bad all week with heartburn raw feeling in thrust. .This has been happening for years but has gotten worse the past month or so to the extent I ended up in A and E about one month ago and changed back to lansorprazole again .
Tablets are having no effect and have this constant gritty taste in mouth and no appetite at all .Does anybody else with lupus or suspected to have lupus suffer acid reflux that willnot respond to ppis ?
Sore throat & painful ear mainly when sleeping. Is this reflux related?
Mycophenolate - sore throat
Weird lupus flare including burning when I pee and sore throat 
Heartburn remedies anyone?
Throat 
I have GERD that I've eventually associated with Lupus (or one of the raft of symptoms I had which should have told me something was up). I don't take PPIs partly because they made me feel ill and partly because you don't know whether reflux is caused by low acid or high acid. You can test that yourself by, if after you get symptoms, drink some lemon juice and if it makes you feel a little better you may have low acid. I think you can get digestive enzymes to help if it's that but better to do it through a nutritionist.
I've eventually controlled it by diet i.e. keeping a food diary and eliminating things that set it off. That said I've suddenly developed the capacity for new food intolerances and got awful reflux after eating some organic beef mince. Go figure! I'm still getting symptoms after a week, which is mucking up my pred reduction programme.
There are a few people on here who have GERD...
Looking back, this was my first symptom, which I foolishly ignored for some months, causing damage to my oesophagus. I now take 2 omeprazole twice a day. A huge dose, on which I've experimented cutting down. No, it's needed, and after having ulcers in my oesophagus ( I emphasise here that they were the result of ignoring severe symptoms for six months) I suppose I will have to risk the consequences.
Do try to experiment with what may trigger it for you and follow that. I love coffee, but that is now a once a month treat. My oesophagus is scarred and narrowed so a lot of food can't reach my stomach. Any kind of stress triggers it badly. Trying Treetop's advice is a good idea.I wince at the thought of lemon juice but that's entirely a result of my stupidity.
There's lots of advice on the internet about GORD/GERD and various foods. It's always worth experimenting. Please don't let my experiences scare you, and please chase up the problem. I very much regret that I didn't.
I do hope you find some relief.
I was on 2 omeprazole a day for months afew years back .Back on the lansoprazole now tho after symtoms been getting worse and not getting any relief at all !I partly blame rightly or wrongly my troubles on taking ppis and ranitidine for years .Been told I've A long wait for another endoscopy
I've bee on ppis for many years now tried going back to ranitidine the past year but the acid has increased .Had endoscopybdine around four five years ago and inflammation was found in stomach .Gps just keep throwing tablets at me with no relief .Been referred back to gastro people but waiting list is unbelievable apparently
I'm always pretty appalled how PPIs are thrown about like sweets, particularly when there are other options to try first and that they can make the problem worse (it just depends what's causing it). There's also a bacteria that causes GERD, so they could test for that too.
I forgot to mention positioning when you sleep - something I picked up on when my daughter was a baby with reflux. Prop yourself up on pillows so your back is raised, or elevate the head of your bed. It can save a lot of the morning soreness.
You can eat your main meal at lunchtime, and don't eat after 5pm, too.
Chewing slowly means that food is half digested when it hits your stomach. It helps.
My trigger foods are tomatoes, coffee, gluten and high carb intake in general, red wine (and alcohol mostly, but I can get away with the odd vodka or whisky).
Then there's also apple cider vinegar after each meal.
Alcohol is definitely a trigger for me all I drink mostly is beer tho I suspect the smoking is worse for the reflux than the alcohol .
I enjoy a drink it's the only time I can get some relief from a lot of the symptoms and basically not feeling right all the time .
Does the medication for lupus clash with drinking alcohol ?
I think Pred does but not hydroxy, though don't quote me on that. I'm not drinking at all atm, because although I like a drink I always respond to serious illness by giving up. But then I have a young child so can't afford bad reactions and so forth.