I have Lupus (SLE) however, this question is indirectly associated with Lupus. I had cancer (prostate) had to have surgery to have it removed. They had to remove 2 of the 3 (for a lack of better words) the valves that control the Urine. The only one left is the first one. I leak/dribble constantly. I have & still do the exercises to strengthen the muscles, but to no avail.
Does anyone have any ideas of what to do to help it.? This has been going on for 2 years. If I have to go I can somewhat hold it for a few minutes, but after that it will come out on its on in a stream.
Any suggestions will be helpful.
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Tiras
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Post surgical stress urinary incontinence is not uncommon after prostatectomy. There are both surgical and nonsurgical solutions to help with this. I am happy to go over options in detail in PM. I can send you a long list of options but the source is quite technical.
If you want a simpler answer…. I’d make an appt with your urologist. They would be the one to handle this and it isn’t rare so they should be able to help. Pelvic floor exercises only help 50% of the time and that’s in folks who wait years after surgery to see someone. You need something more and it’s worth the energy to seek out a good urologist. It will make all the difference in your quality of life.
Oh geez. That’s exactly what I was thinking of. Sometimes they also do a male pessary. I am so sorry. I’m guessing you are in the US then. What more do you need to fail for approval? Like what else does he have to try to get approval? Only other noninvasive solution that I know of is a clamp but with your skin condition, that’d be a horrible idea.
Insurance says not a life threatening procedure. They say it a more cosmetic and a convenience surgery. Yes, I did try the clamp (and like you, the doctor said with skin issues just try it) I did and within an hour, I had blisters, and you can guess where? So I was hoping for some different answers to maybe try. I know it is extremely embarrassing. I usually go through 3 or 4 heavy duty pads a day. At night when I get up, it is literally soaking wet!😢
What a catch-22 Tiras. My heart goes out to you. I know exactly where you are in the process. I would say do a GoFundMe account but you’d probably have to lie about the reason. It’s all about raising the money. I looked and there are no clinical trials… sometimes this is a back door into free care. Condom catheters (which no one is going to carry around) or frequent straight caths is all there is for conservative management. No medications are approved but there is some limited efficacy in duloxetine.
I wish there was more I could do to advise or help. Maybe someone else will have some more sound pointers. I just really feel for you Tiras.
One more thing, and this is why I was looking for some suggestions. The pads rubbing are causing even more skin issues. 😢 Dermatologist, has said let air out with only cream on, but with leaking, that’s not an much of an option. Fortunately, I do live in a rural area, and there are no houses that we can see or can see us. So I do go outside and air out a bit, at times.😂
I am a female but think I have some ideas or suggestions because I also have severe incontinence. First is to let your urologist know your problem. See if he will script you Trospium ER (Sanctura) or Darifenicin (Enablex). When that didn't work for me the urologist suggested Botox. That really did the job and I had control again. Good Luck!
Thank you so much, I see my urologist every 3 months, so we are trying to find a solution, that insurance will cover. I have already tried several different medication, but to no avail yet. Urologist says with the 2 valves that had to be taken out with surgery, it may be it is what it is?
I hope not Tiras! Don't settle! I had tried everything also and that's why when the doctor approached the ins with Botox they approved it. I live in the states and completely understand the ins co denials. Have your doc call then you call. This is a quality of life issue! Not cosmetic. I pray it all goes well ♥
Botox sounds like a great idea! You must love your urologist. You are 100% correct that it’s a quality of life issue. I can’t imagine what more insurance wants from Tiras to get proper treatment.
Hi there, my husband too has exactly the same challenge after prostate cancer, 9 years ago and the only thing that gives him a bit more security and control back together with the exercises are pants from an online company called Easylife, the trunks version. They wash up really well, do not look like whatever people's impression of wee pants are and just give him the extra time before and after. It's not ideal, but have saved him from embarrassment and being self conscious. As a woman with Lupus and the starting of the same problem, I too wear knickers from a company called Cheeky Wipes. They have given me my life back for all the same reasons. As a yoga teacher, it was starting to become tiresome and worrying. Too much information? Sorry, just wanted you to know that you are not alone. Hope this has helped.
Thank you so much. I will check into this and may order a pair and see what happens. It is embarrassing and always worry when out in public, and no restrooms close by. I can somewhat hold it from gushing out for 5 minutes or less, but still have the dribble issues, especially with stress leakage, (bending, lifting, coughing, moving certain ways, etc.). With medical issues I have found you might as well throw modesty out the window. With my skin issues, I have to go every 3 months to my dermatologist (she and all of her staff are females) I’m a male, yes, completely nude, and get a head to toe full body skin inspection (so to speak of). This is embarrassing, but more so because of the possibility of leaking. . So when it comes to that, never to much information. We actually never know when we can help and or answer someone else’s issues!❤️
I do not know how you feel, but my husband's prostate cancer and initial visits and exams were with a female GP. He did not encounter a male surgeon until he went in for surgery. He is a very private person. All I have is the experience of a woman seeing male gynaecologists and how that made me feel. Enough said. Best wishes and hope you can resolve this issue with whatever dignity you have in tact.
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