Does this look like a lupus rash?: Hi all, So far... - LUPUS UK

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Does this look like a lupus rash?

Hnewman2 profile image
9 Replies

Hi all,

So far I've been diagnosed with UCTD - pending the results of several tests/scans.

My GP suspects lupus but Rhuemy doesn't want to label it yet until she is sure.

I get rashes all of the time but not always on my face. This one came up today, it looks a lot more faint in the photo than in person unfortunately due to bad lighting but can anyone advise if this looks like a lupus rash?

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Hnewman2
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9 Replies
minka profile image
minka

it does look like the butterfly rash but what your bloods are showing would help also watch for dry eyes is another possible indicator You dont say if you have any joint problems

Hnewman2 profile image
Hnewman2 in reply to minka

Hi Minka,

I do get dry eyes yes and I have a lot of problems with swelling and pain in my joints. This is all being investigated by my Rhuemy and as my GP didn't do many tests initially we are waiting for all the results to come back.

So far I've been told I have extremely high antipholosiphid antibodies IgG and Anti-beta GP1. I know there were other issues present but I haven't been given any details

minka profile image
minka in reply to Hnewman2

THIS COULD BE SPONDUROPATHY THINK THATS THE RIGHT SPELLING MY COUSIN COULD NOT EVEN GET OF BED OR BUTTON HIS SHIRT WHENT TO SEE A RUMI WHO GAVE HIM A JAB IN THE BUM WITH A KENOLOUG INJECTION TWO DAYS LATER HE IS WALKING AND SWELLING AND JOINT PAIN ALL GOING HE IS FINE NOW 300 QUID AND PRIVATE APPOINTMENT AND SORTED LIKE NEW.

aLL HIS FINGERS WHERE LIKE SAUSAGES BACK PAIN KNEES NOT TRACKING UNDER KNEE CAP ETC ETC RIGHT MESS HE WAS

dycotec profile image
dycotec

Looks like a butterfly rash to me!

Caramia64 profile image
Caramia64

certainly does look like a malar rash , and with other results and symptoms could well indicate lupus , however rheumatologists appear to be ultra cautious before giving a definitive diagnosis !

Hnewman2 profile image
Hnewman2 in reply to Caramia64

You're right, it seems very hard to get a diagnosis of lupus in concrete I keep getting the label then they take it away! Confusing!

Caramia64 profile image
Caramia64

are you receiving any treatment ?

Hnewman2 profile image
Hnewman2 in reply to Caramia64

Nothing at all yet no 😔 They won't treat me until they do more tests

Caramia64 profile image
Caramia64

that's not so good , but they wouldn't want to give you something that maybe isn't indicated. Hope you get some tests soon , I had to get a skin biopsy before it was diagnosed as lupus ( along with blood test results ).

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