I had a face to face appointment at Guys hospital today. I haven't seen the consultant there for 13 months. I've come aways very pleased. His given my steroids for 3 months starting at 20mg then reducing. Also given me something for my raynaurds again.
He said he thinks I need to go back on methotrexate. Even if I can tolerate a low dose of 10mg. He didn't prescribe me any as he said it needs to be done locally because of blood test monitoring. It's not worth it travelling to Guys hospital just for blood test as I live quite far away. So his writing in my letter to recommend starting that again. So hopefully the local hospital will listen. He did not mention fibro once. I didn't tell him that my local hospital was trying to diagnose me with that. I wanted to give him the same info I gave her and see what he came up with, I didn't want to put the fibro thought into his head.
Basically his conclusion was to keep taking the hydroxy but maybe it's not working as well now. So I should take methotrexate as well. I got some bloods done there today as well. I really hope now that if he writes to my local hospital they will take up his recommendation for it.
I never get my hopes up for these London appointments as they always seem to go badly. I've honestly come away feeling so great from it. I never expected anything as I don't want to disappoint myself. So now the wait will be to see if the local hospital give me the meds or try to carry on with that the problem is fibro. But I'm not that bothered right now as I have steroids for 3 months and that will defo help me out for a bit.
Thank you to everyone for your lovely comments on my previous post. I don't often get down about things. I always just get on with things have done my whole life so far. I think it was just that in the space of a 5 minutes phone conversation I went back to being the 15 year old who had no clue what was going on.
I'm looking forward to taking my steroids later and getting back to things as I was!!
Hope everyone is well 😀