Burning and tingling through out body and chest/lung area?

[Nvrenfhorses2]

Hello, I may have asked this before, sorry, or it may have been my Lyme group,

I have horrible burning sensations and all over bone and muscle pain when I’m having a flare. I have been under lots of stress, caring for a brother who is actively dying from cancer, cold weather, and just seeing my horses at the barn makes me a cripple lately. I have been on Hydroxychloroquin for 10 months and I still get this way! I can’t squeeze a shampoo bottle. I thought things would be better by now. The burning and nerve sensations are awful. It feels like burning in my chest or lungs sometimes. Has anyone else felt this way too? I ask because I don’t know if it’s from my Lyme. I’m calling my rheumatologist tomorrow. Thank you for your support everyone💕

[lupie-Cathy]

I wonder if you have acid reflux, seems to be a common problem with autoimmune disorders I have suddenly developed that about a year ago ended up in hospital with chest pains, I had a very high blood pressure at the time too. It wasn’t my heart at all but my stomach. After various doses of Lansoprazole I have managed to settle things to tolerable with two doses of 15mg a day one first thing in the morning and one an hour before my evening meal, though I still get the burning and pains sometimes it’s not as bad as it was. I was on the waiting list for a endoscopy but what with covid stopping everything and having moved and not got a consultant yet goodness knows when I’ll get it looked at! Hope you find an answer to what’s causing yours soon all the best stay safe

[Nvrenfhorses2 in reply to lupie-Cathy]

Hi Cathy, I’m so sorry you haven’t been able to get the proper test. This Covid has really impaired health care . I have had a little heartburn, but this feeling is different, It’s through my whole body and feels like tingling buzzing heat. It’s so weird. I thought I had MS because my right hand trembles. I have an appt with my rhummy this Friday so I’m looking forward to that.

I’m glad you have gotten relief for your symptoms! I know RA and Lupus can affect many systems of the body. I just get confused if it’s nerve damage from my Lyme disease... one more wrench in the mix ! Thank you for your advise I will ask my dr about the reflux too!

Stay safe! Thank you! 💜