PhD researcher, Suzanne van Even is looking for someone of African or African Caribbean ancestry who has lupus to join her PhD supervisory team as a patient research partner. For more information please contact: Suzanne van Even, Suzanne.Vaneven@uwe.ac.uk or 07873 618919.
"I am looking for someone of African or African Caribbean ancestry who has lupus to join my PhD supervisory team as a patient research partner. You don’t need to have any research or academic experience, the expertise you bring to the team would be your experience of living with lupus. We really need the input of someone who has experience of living with an autoimmune rheumatic disease to help shape this project.
You don’t need to have any research or academic experience, the expertise you bring to the team would be your experience of living with lupus. We really need the input of someone who has experience of living with an autoimmune rheumatic disease to help shape this project.
I am doing this research to find out how people with African and African Caribbean ancestry cope with having an autoimmune rheumatic disease. I am particularly interested in finding out how they cope with anxiety and depression which are often associated with having a chronic illness such as lupus.
The aim of the project is to get a better understanding of what the specific support needs are of people with African and African Caribbean ancestry, if they have any unmet support needs and how these can best be met.
The project is at its early stages and it would be fantastic to have your views as to how to shape it going forward with your guidance, lived experience and suggestions.
There aren’t any formal requirements for this role, but you would need to have African or African Caribbean ancestry, be aged 18+, live in the UK and be happy to meet using online platforms (for example Microsoft Teams, Skype or ZOOM)."
Contact Suzanne van Even, Suzanne.Vaneven@uwe.ac.uk or 07873 618919.