***This survey is now closed. Thank you to everyone who took part. You can read more about the future of this project at healthunlocked.com/lupusuk/... ***
LUPUS UK are working with researchers at Cambridge University, a group of people living with lupus, and some of the top lupus specialist doctors in the country, to carry out patient-centred research looking into the experiences of those affected by lupus. We are doing this so we can better understand the feelings you have about diagnosis/ misdiagnosis and how well supported you feel by your doctors. This information will help us to raise awareness and make improvements that are most important to you.
Please click on the link for more information about the study - dropbox.com/s/37c4g6oyf3pwu....
To take part you just need to fill in a questionnaire and a select few people will be contacted to be interviewed/asked further questions (as long as they are happy to do so). All questionnaires and answers will be anonymised and your medical team will not know you’ve been part of the study.
If you have any questions, Melanie Sloan from Cambridge University, is the researcher coordinating this study, so please feel free to email her at firstname.lastname@example.org. She has lupus herself and is one of our community members so will be very understanding and would love to hear all your experiences.
You can fill in the online questionnaire at cambridge.eu.qualtrics.com/...
If you would prefer completing the questionnaire by hand, Melanie will be more than happy to send you one if you email her your postal address.