Trigeminal neuralgia

[Angellealea1]

Good evening all, I'm just wondering if anyone has ever suffered Trigeminal Neuralgia? I've had a flare up of it for about a week, it did subside, but came back with a vengeance. I been to see my GP & he wouldn't prescribe me anything untill he had spoken to my consultants, so he sent a urgent letter on Wednesday, friday I heard nothing so I went back to gp, because I was worried that it was weekend & I had no painkillers prescribed. Gp give me a painkiller mouth spray & said if it was to get worse go to A&E. I'm just wondering what meds where you prescribed?

Cheers

[Roarah]

I have TN as a result of brain damage incurred by strokes. I was given a script for amitryptaline. Regular pain meds really are not very effective for nerve pain and opioids are scary and nauseating for me. Amitryptaline in a small does , non therapeutic for depression, has shown effective for many with TN.

I have not needed my amitryptaline since starting a type of therapy called ACT. It does not get rid of my pain it just allows me to focus less on it and carry on with my life. It is not quick but it has been very effective in improving my quality of life but I did need the amitryptaline until I completed a few weeks of the ACceptance and commitment therapy. Good luck! Xo

[Angellealea1 in reply to Roarah]

Thanks for your comment, I really appreciate it. TN is a terrble pain, this is my second flare up now, but I'm thinking I need to go & see my Neurologist & get to the bottom of the problem.

Thanks for you help x

[Roarah in reply to Angellealea1]

Yes you need to find the reason for the nerve damage. Good luck until than.

[Angellealea1 in reply to Roarah]

Thank you x

[Hidden]

I have TN as part of my Sjögren’s. I think it also relates to long-standing root canal issues including an abscess adjoining my 1st trigeminal nerve.

It mainly affects me when I’m extremely upset or during cold weather spells - my TN triggers.

Otherwise it takes atypical form of burning lips and patchy loss of sensation.

I was on a licensed TN med called Carbamazapine for 5 months but tapered off a few months ago because I felt it was inhibiting the absorption of my Levothyroxine - which is a known problem of Tegretol and I just couldn’t risk. Otherwise I do think it helped me more than other less specific nerve gating drugs ever have. It’s an awful pain I know - hoping you can be seen soon by your neurologist.

[CecilyParsley]

I get trigeminal neuralgia and tempromandible joint disorder too. I do nkt get any additional pain relief as I am on MST anyway. It is so painful and miserable and it usually triggers my tinnitus. I really hope that you get some relief. I find it hard to understand why your GP is so loathe to prescribe adequate pain relief for your flare.