Hi recently diagnosed with sero negative sle , I have an enlarged thymus and a hole heap of symptoms that over the years Gp's have just passed off as me being anxious . Until recently when I got seriously ill . Anyhow , I wanted to know if anyone else has suffered with trigmineal neuralgia , hope Ive spelt that correctly . I felt I was having a flare ,sore throat , glands up , joint pains ,chest pain . Then I developed excruciating facial pain left side along with a fullness and ringing in my ear . Had my teeth checked they were okay and Gp put me on carbamazepine . Side effects grim ,but the pain is under control . No sign of what's causing it ! Any ideas or suggestions , GP wouldn't comit to it being lupus related , so my work are going to punish me for being off sick , I've contacted my rheumy but I have to wait three months to see them ,so I feel lost as usual , any words of wisdom . I did check my pee and it had protein and leukocytes in but my GP dismissed that . The pain has been so bad any ideas .
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