Is neuralgia symptom of SLE?

[Jacqui65]

Hello!

I am waiting to attend an appointment to see a Rheumatologist soon, as my GP is suspecting SLE. But I was wondering if neuralgia is one of many symptoms of SLE?

I would appreciate any advice please.

[Sara_A]

Hi, I'm not sure I've ever seen it as a listed symptom but I have occipital neuralgia and have had for several years with lupus and aps.

What sort of nerve pain is it? If u have swelling in joints it could be causing nerve pain?

[misty14]

Hi Jacquie

Inflammation of nerves is a symptom of SLE which gives neuralgia so all part of it sadly. Can be very painful. Well worth telling your Rheumy when you go. Good luck for your first appointment. Hope it goes well. Have you been ill a long time?. X

[educk]

Hi, I too have occipital neuralgia and my neurologist seemed to think there was a link, although I haven't seen my rheumatologist since been diagnosed with it to discuss with him.

Good luck

[Chanpreet_Walia LUPUS UK]

Hi Jacqui65,

Yes, neuralgia can be linked to SLE. According to ‘The Lupus Encyclopedia’ by Donald E Thomas Jr “Cranial neuropathy, plexopathy, and polyneuropathy occur due to inflammation or damage to peripheral nerves and cause weakness, numbness, or burning pain in the areas affected”.

It is important to discuss this with your rheumatologist as this can ensure you get the correct advice and treatment.

If you would like to know about lupus, you can request a free information pack to be sent to your door or simply download the information via the link: lupusuk.org.uk/request-info... .

[Fezzywig]

I had no idea that these two conditions were related, although I have only been diagnosed with Lupus recently. I am a Primary Immune patient so I have lots of chronic issues going on along with other autoimmune disorders. My nerve symptoms have only started to really bother me this past year, but they are getting really much worse as time goes on. There is horrible burning and pain. It feels as though my skin is on fire. I wouldn't have thought to put this together with Lupus, but it's good to know. I need to share this with my rheumy I guess.

[Mealfredo78]

I've also just been diagnosed with trimenial neuralgia..... pain left side of face along jaw... its been pain full and throbbing