Just curious how often everyone has flare ups of their condition? How does a flare affect you?
I don’t have an official diagnosis but had what has been referred to as a ‘flare up of my auto immune system’ 4 months ago, resulting in Myelitis and Raynauds and other weird symptoms.
I haven’t had any medical treatment but was making a little bit of progress in that I could walk a bit more and go out of the house for around 3 hours. 5 days ago I seemed to have another ‘flare’ and have pretty much been bed bound since. Symptoms include: very heavy legs, feeling faint when i am standing, pins and needles in feet, dry mouth and strange chalky taste in mouth, muscles twitching in my thighs, prune-like fingers (looks like I’ve been in the bath for hours!).
Hope everyone is ok thanks for all your lovely responses to my last post.