Sick of being sick and personality change skull head, numbness

[Burnley1234]

Could weep after everything I have to start same tests again plus they seem more interested in bile malabsorption issues so checking for any vitamin signs in blood I said I thought your redoing lupus or inflammatory test got shouted at for being 5minutes late for app at docs also sick off ulcers or abscesses in gums painful tongue and a new development in me I have diagnosis of guttate psoriasis but getting excruciating pain off single spots on body also in my head now one side of my crown is numb so I'm baffled sick to death of all this,plus not possible to work I also have seizures sick of being at home smoking a lot of weed an personality has changed very bitter docs useless waste of space! have had cold infection since October had to go to hospital got emergency treatment antibiotics,didn't work again! The two hospitals concerned shockingly sly, wrong diagnosis of spina biffida at 18 then found apparently wear an tear osteoarthritis 4years ago in exactly same place the significance of this means I was born with arthritis yet they both hospitals refuse to explain where do I go from here!

[LupusKaren]

Dear Burnley1234, I am so sorry you are going through so much right now. I have no medical advice, but would suggest at your earliest convenience, making an appointment with a GP, a new one if your current one is not helping you at all, you clearly need some support.

If you do one thing today, make that call.

Take care and good luck.

[Burnley1234 in reply to LupusKaren]

Thanks for reply I know we've all got drama going on but I'm just about done whith explaining new symptoms,same old ones,doctors that have seen me bleed for 10,months did nothing be very reassuring about test results i.e. good news no malabsorption great,actual result 90to95%failure whith liver an I won't bore you but that's been life changing no apology just 'you must give up smokin an coffee,now if I eat normal food horrendously sick forever,had to wait for ear drum to rupture inner drum5weeks of mind blowing pain,now near deaf in that ear forever,gutterate psoriasis single spots head and torso horrendous pain was told irellevant,now been told serious,white blood cells elevated 12 years, nothing said,diverticula pouches was told no bowel or stomach problems,bowel polyps removed was told non cancerous type not anything wrong whith polyps,guess what wrong again was a cancerous type 8 or9mm forgot the name of it but thankfully not cancerous but checkups forever,also childhood arthritis denied diagnosis for years and some major nerve pain diagnosis for life,I have ranted on a bit and I've got more appointments this week but I'm just realising how bad this all is really struggling to come to terms whith it and I'm angry about it all so pls don't be offended by my tone I'm just venting the wells dry I'm struggling to drag out more reserves to listen to the same rubbish again,but thanks for replying an if you need to vent feel free cos my head is spinning so for you I guess your struggling?but how do you manage or find something to do inspire of being ill?

[LupusKaren in reply to Burnley1234]

Absolutely no offence taken Burnley, so please do not worry. It sounds like you have been badly let down, so your feelings of anger are to be expected, we all here have gone through varying stages of anger and utter sadness.

Personally what got me through the dismissals and rubbish diagnosis, was my own self belief, but it was sorely tested. I literally take it one day at time, and try to live my life as best as I can possibly can, nothing more, nothing less.

I would add for me, the key element was having a truly fantastic GP who stuck with me despite test results being normal, until one day they were not, and that was the key that unlocked my Lupus and other conditions, door.

[Shorthouse]

It’s probably a bad flare. I had a numb head years ago ( acupuncture)sorted it .its really horrid isn’t it?try to get lots of good food in (it really helped me)it’s so easy to eat rubbish when you can’t be arsed.xhope you feel a bit better soon

[Mystik in reply to Shorthouse]

Same here was told flare up or stress and had mri done too I have my back and neck massaged once a week so that helps