My wife after suffering many years of illness was diagnosed with Lupus in December last year. Thanks to great doctors she is now living a semi normal life.
However, during her illness her family turned from friendly rational folk into the in laws from hell. They initially said she doesnt have lupus and there is nothing wrong with her despite her finding difficulty getting out of bed. (this was also said to my my wife which made her feel like a fraud and a failure). Then they blamed me for her illness that it was all manufactured, a mental illness and that I am responsible.
I have spent many hours trying to explain, I have given them many of the lupus uk leaflets (which are excellent - well done again lupus Uk). But they havent read or listened any of it and are stubborn in their ill informed views.
I have a lot of in laws and they hunt in a pack and most times it feels like we are under seige or attack at a time when we could do without it.
Grateful for you thoughts, experiences and suggestions on how to explain lupus to those who dont know and possibly dont want to know.
Incidentally my in laws are not bad people they are just ill informed and misguided.