Mammogram : Hi I went for my first mammogram last... - LUPUS UK

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Mammogram

Wolf1 profile image
9 Replies

Hi

I went for my first mammogram last Thursday. I’ve been recalled Togo to hospital tomorrow!! I’m obviously concerned. I have lupus, with lung complications, mixed connective tissue disease. Does anyone know if this puts me/us at higher risk of breast cancer? Xx

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Wolf1
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PMRpro profile image
PMRpro

pubs.rsna.org/doi/pdf/10.11...

This isn't too difficult to read but the point is this bit:

"Connective tissue diseases including rheumatoid arthritis, systemic lupus

erythematosus, dermatomyositis-polymyositis, and systemic scleroderma

typically manifest with bilateral axillary lymphadenopathy, and

stromal calcifications are also seen in the latter three disease processes. "

Did you tell them your medical history in detail?

Usually when they find something that doesn't fit they use other imaging to look more closely.

Wolf1 profile image
Wolf1 in reply toPMRpro

Hi thanks. I was called for mammogram as a research study re younger women - I’m 48. Had no concerns re boobs. So they don’t know my illnesses xx

Sorry I can’t help you with your question although I think PMRpro has given some good pointers. I believe they often recall people for something which does usually not turn out to be a problem. Hopefully this will be the case for you as I’ve had quite a few friends get recalled but not turn out to have anything wrong. Please try not to worry unduly.

I30 minutes ago I had my second routine mammogram age 55. The first was in a mobile screening unit in another area of Scotland.

I just wonder if they recalled you by phone or letter or told you then and there that they needed you back again? I was so relieved to get it over with painlessly that I rushed out and never asked if all was fine.

🤞🏽 🤞🏽all will prove to be fine for you on second viewing. xx

Wolf1 profile image
Wolf1 in reply to

Thanks. Mine was done in mobile unit- didn’t hurt. I received recall letter tue. Going in tomorrow at 10.30 xx

in reply toWolf1

Thanks for giving me an idea of the time frame. I didn’t explain to them that I have Sjögren’s but they had to get me seated as I have problems standing and get dizzy. They just assumed it was my sciatica. But my GP is also one of the breast clinic doctors so I feel in quite safe hands even with a recall. Better to be diagnosed ASAP. Also if you’re part of a research programme then perhaps this is making them extra vigilant?

I wonder if the machines in the mobile units are as sophisticated as the ones used in hospital outpatient screening clinics like the one I had today?

Certainly where I lived previously, an island, many friends were recalled and only two that I can recall had BC and are both in full remission now. I read that only 1 in 4 recalls are diagnosed with BC. Xx

Wolf1 profile image
Wolf1 in reply to

Yes I’ve read that too. Surely I can’t have anything else to cope withx

in reply toWolf1

Hopefully not. But if so better to catch it now eh. X

shaunalouise26 profile image
shaunalouise26

Hi , just to give you a bit of reassurance. I had a mammogram a few years ago and they phoned me the next day to go in so obviously I was in a complete panic. Turned out all was ok I just have lots of tissue. I have UCTD with features of lupus, scleroderma and polymyositis. It's good that they are being really thorough and I hope everything will be ok for you as well x

bedboundjules profile image
bedboundjules

96% of call backs are due to shadowing from the angle in which the shots were taken. I am 50 live in the US have had three thus far and never have been called back. I am lucky to have those pliable breast were I would feel something right away, but also have the connective tissue disease. So no worries 😉 you will conquer this like a champ ❣️❣️

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