When I got my diagnosis of SLE/Sjorgens I declined steroids as I was worried about side effects. I opted to see how I got on with 400mg Hydroxychloroquine alone. I have seen improvements with brain fog and skin rashes. I still have that constant deep down fatigue that I think only my fellow lupies will understand, but I have less days where I need to stay in bed. My neutrofils have remained below normal and have dropped again slightly at the last count. I still wake with stiff joints and experience pain in my hips, but I have not had any significant inflammation of the joints and tendons. But I wonder if I might feel better with a course of steroids. I long to feel a bit more normal than I do. That contant feeling of being hungover is getting me down and I am dreading the autumn and winter. Any thoughts or advice?
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