David Shrigley has it about right.
I've deteriorated quite badly in the last couple of weeks, with increasing muscle weakness and fatigue now making it hard to stand. I've seen my rheumy and endo and had muscle MRIs last week. Tomorrow, a muscle biopsy.
Rheumy says he is sure I will need IV methylprednisolone, given repeatedly over a couple of weeks. I've spoken to both him and my endo about the horrible reaction I have to oral pred doses over 4mg (shaking, sweats, nausea, racing heart etc) . Sadly, neither have any idea what might be causing it or what could be done to stop it.
So I'm booked in as an inpatient so I can be monitored throughout.
Be happy to hear anyone who has traveled this road before. x