At a recent rheumy visit the doctor seemed shocked by the amount of sleep I currently need. Which is 11-12 hours at night & 1-2 hours in the afternoon. This has recently increased by a few hours & my bloods are showing that lupus is more active. So that makes sense to me, as fatigue has always been my worst symptom.
I sleep really well, thank fully, but wake up still tired & need to pace myself carefully throughout the day. The rheumy says I should have lots of energy with this amount of sleep & she wants me to take amytripiline to improve sleep quality. I'm not keen as I have 2 friends who got nasty side effects with it, & I struggle with taking tablets due to ibs. So I would be very interested to hear from everyone out there about your sleep patterns & energy levels.
Best wishes. X