Hi all, I was just wondering how often we were meant to be seen by our rheumy and how often we are supposed to get our bloods done? I was diagnosed a year and a half ago and have seen my rheumy twice and my dermatologist (for severe hair loss) twice. My rheumy has just sent me my next appointment which is for a year away! Recently, I've been getting new symptoms, I've developed an awful malar rash which I hadn't had before and this morning I woke up with really puffy eyes and swollen fingers. Am I supposed to be telling anyone about these new symptoms or just wait until my next appointment? My husband thinks I should be going to the GP so that these new symptoms will at least be documented. I had a bad bout of costochondritis in October which my GP said was related to lupus and she was very supportive but when I told my rheumy at my appointment in February she completely dismissed it. Am getting very confused and also feeling abit lost. Any advice would be greatly appreciated. Thankyou x
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