Hi all. I had a consult with my rheumatologist, which was really the first serious exploration of my physical state and medication routine since the pandemic began.
We agreed that it was time I stopped taking pred (I'm on a maintenance dose of 5mg). However, I do have real difficulty coming off it. My life is too busy with too many stresses (and I do my best to pace but it is often impossible) and fatigue/joint pains result. So she suggested methotrexate as a substitute to help me come off.
I would them be on 300mg hydroxy and 12mg per week of metho. Plus low-dose naltrexone. We then discussed whether pills or injections were better.
In any case, they will review my bloods and arrange a discussion about the med with a nurse.
So I'd really like to know your experiences with the drug - effectiveness, does it really help to come off pred, side effects, best route of taking.
And I'd be curious to know about how it affects the immune system as it is a chemo drug. My rheumy said pred is worse than metho in this respect.
In the seven years since I was diagnosed, this is the first time a change of regime has been suggested.
Thanks all.