Hi everyone, Well, I was diagnosed with Lupus last September, after falling ill, one day I was at a friends barbecue and the next day I got up for work and my body felt like I had been in a fight! I was dragging myself around for a few days until one morning I woke up and I litreally couldn't lift my head up. My whole body was in pain, I was like this for nearly 2 months, my family suffering with me, I just about managed to walk to the bathroom. I had numerous blood tests and eventually was diagnosed.
It was a shock, I had great health, never really been ill, the odd cold...... I have gained over a stone in weight, I am not use to the weight, I am struggling with the weight gain, my moods are quite up and down and I am finally seeking counselling to help me with the emotional strain this has put on me. My main physical issue is the swelling of my shoulders and just below my neck,. I find it hard to sleep as I am in pain constantly and my chest tightens up at night causing breathlesseness waking me up from my sleep... and I love my sleep! I am tired sometimes to the point where I just have to lie down and sleep to re-energise.
I have realised that I can't live the life like I used to, I was a confident, young woman who handled stress and the daily dramas of life quite easily and now I feel like I had to learn to be confident again and have shyed away from going out with my friends because of my weight gain and the fact that my appearence has changed so much due to the drugs.
So why am I telling you all this? My whole life has turned upside down, but the only way I can get through this is to accept that I am not the same person anymore and I have to face my problems head on. I have joined this forum to find help from fellow sufferers, I suffered in silence and am now ready to face it. So please lets talk about how we feel and make friends and share our concerns and worries and face this together.