Muscle wasting?

[Ianrussell69]

Hi I’ve got mctd and been a bit ill since September I’m a 48yr young man errrrrrrrr with quite a physical job but the last 12 month I’ve lost loads of muscle only off my arms ? Even my daughter has said we’re has it gone and I was wondering if with mctd/ lupus you get muscle wasting I’ve also got the fatigue back

[CarolMcl]

Hi Ian

With lupus athritis you can get muscle wasting (atrophy) is the arthritis becomes chronic

[whisperit]

Hello Ianr,

Don't forget how quickly you can lose muscle mass when you decrease your physical activity. According to the livestrong website, in the best case scenario, ( "...if you are incredibly fit and have been training for years..."), then "...you’ll hang onto your fitness level for about three months...". Beyond this point, you start losing muscle mass quite quickly. So if you've been doing less than normal for a while, it might be that it's just the result of normal deconditioning? x

[Apple68]

Hello, Statins can do this,are you taking them?, I think you need to see yor GP fairly quickly

and have a blood test. Good luck, xx

[Hidden]

I was gonna say, what medications are you on? Could be the side effects. I was previously on the medication which caused a whole list of weirdness. What I am saying is, I hope you are not making yourself sicker by staying on drugs which are causing this. Believe me, drug toxicity could be serious and rheumatologists never warn you for that, either.

[Ianrussell69 in reply to Hidden]

Yes been there with methatrexate got sepcis after 6mth then got a fistula and I’ve had to stop methatrexate until September

[dugthe in reply to Hidden]

i have stopped taking all meds i take 1 at a time for few weeks and was worse ,,i do cut back on meds wen i can ,,but always end up worse not that it can get much worse ,,

[Ianrussell69 in reply to dugthe]

What Meds are you on

[Paul_Howard Partner LUPUS UK in reply to dugthe]

Hi dugthe ,

Is your doctor aware that you have stopped taking your medication? Was this done under their supervision?

[leslieliesel]

myositis?? I see that it is on the bottom of your question...have you been DX'd with myostis?? Xx

[Ianrussell69 in reply to leslieliesel]

Sorry it’s mixed connective tissue

[leslieliesel in reply to Ianrussell69]

That's good..no Mytosis

[dugthe]

aawrite ian aye am 49 yr old ex builder and had too give up work because of all ailments reffering to lupus and other illnesses in which doctors blamed all my fatyigue an pains in knees hands etc ,,, also i have malar rash and docs blamed previous nerve damage rather than look into it until 5 yr of complaining and finally sent me to rhuemy ,,, also sores in mouth an nose anyway i have read bits about muscle and bone wastage due too some meds ,,i gave up work at 42 , and still ill everyday ,,and feels as if i always hungover ,, i have not had a day feeling good in 2yrs and maybe longer ,,do you get a break from lupus as i dont ,, there isnt very much men have lupus in which i have read on this ...

[Ianrussell69 in reply to dugthe]

Hi I’m lucky in that I get 3to 6 good month then I get gradually worse and this normally lasts 1to 3month I’ve had to stop methatrexate for 12 month but hopefully going back on it in sept ,I’m a carpenter on site and this weather is playing havoc with my rainods at the min but I find that a hot bath helps with the joints hope you get the Meds started with rumi I was started on hydroxy then methatrexate ,methatrexate really helped but the pills made me ill for 24/48 hr but I was put on injections and they were much better let me now how you get on