Why do my hands hurt so much!!! Stiff and rash appears . Hands are very red compared to normal. Dark red blotches on palm

[Lisalou19]

I’ve no diagnosis

Up until recently my symptoms mainly affected my face!!! Now I’m getting extreme pain in my hands with a rash and very dry. Can anyone relate to this symptom?

I have emergency steroids so have taken those and symptoms are relieving . I can’t seem to add more than one photo

[Curly1430]

Lisa I get the exact same they way I describe it it’s like frost bite when you make snowballs than go back in the heat it’s like a cold pain. Coz

[leslieliesel]

I can relate....Before I began Hydroxychloraquine(sp), my hands hurt ...REALLY hurt...now they do not...I do have a rash on them as I write this..they are very dry and are splitting in spots..I was on a little Florida Vacation , I guess my sun protection didn't work completely..my forehead and neck also broke out...I was Dx'd with subucate Lupus last fall

[Lisalou19 in reply to leslieliesel]

How was you diagnosed? My rash that breaks out at times can be very extreme on my forehead , so I’ve always thought it couldn’t be lupus as it’s not the normal butterfly rash

[leslieliesel in reply to Lisalou19]

I finally went to the Dr to see what the heck my rash was...I had all kinds of blood work.The Blood work came back high ANA 1:2400...so I insisted on a skin biopsy because my dermatologist has been telling me I have lichen planus and the sun helps it...WONG!! The pathology report confirmed Lupus...at first I was DX'd with discoid lupus...now Subucate lupus....anyhow, if not for my rash that was horrid on my Chest, back,shoulders hands, lower arms... NO butterfly rash though....I was also tested for Dermamyiositis which thankfully came back negative...sorry if I just confused you...How do you put pictures up??

[Lisalou19 in reply to leslieliesel]

Funny I have been to guys and st Thomas to see a dermatologist, she run every form of allergy test, all negative!!!!! Then told I would require blood tests, but that hospital never followed me up!!!!

I think my last option is a skin biopsy, I just need respite!!!!

As for photo, when you post at the bottom is says add photo, it’s a shame I can only post one. I’d really like to share a number of photos. X

[leslieliesel in reply to Lisalou19]

Yes..skin biopsy!!!...otherwise I would have been treated for psoriasis ,or lichen planus..which of course wouldn't help with lupus....thanks for the photo instuction Xx

[Lisalou19 in reply to leslieliesel]

Can I ask just 1 more question. Do you need to have the biopsy during a flare up? I’m prepared to pay privately but of course I’ve no idea of when a flare will occur so hard to book an appointment. X

[leslieliesel in reply to Lisalou19]

That is when I had my biopsy...my guess is that is when it has to be done, during a flare...It is difficult for me to understand why it is hard for everyone to get an appointment...I take it you live in the UK?? or at least not the US?? Here(US) I can get an appointment any time I need one...It seems so unfair to have to wait weeks/months, to be seen by a Dr...Why is that?? xx

[Lisalou19 in reply to leslieliesel]

Yes I’m in the uk, the system we have means we wait at least 3 months to see a specialist on the nhs!!!! And that’s a good Wait , having said that I’ve had an appointment booked since January for mid April which was cancelled last week!!!! So frustrating x

[leslieliesel in reply to Lisalou19]

To me, that seems outrageous ..probably does to you as well!! I guess as expensive as it is here in the US for good health insurance...it is well worth it....problem is not all US citizens can afford health insurance..so it is a mess over the ocean from you, for many here as well...Not right....

[Mbminges in reply to Lisalou19]

Blood test should do it.

[Lisalou19 in reply to Mbminges]

Everything keeps coming back normal, apart from low vitamin D

My dad is a rheumatoid sufferer and has never produced a positive blood test for anything!!!! It’s so frustrating as my symptoms are very physical to see

[Mbminges in reply to Lisalou19]

I had rash on my arms, shoulders and tops of my legs as well as the butterfly rash. I've found if I keep my skin cool spray water constantly or get in the water I won't get the sun rash but it seems to always be on my face. But among other things I had terrible pain that would move around to different joints. I called it My gremlin. Also would have muscle spasms that would move around as well. Much better as far as pain now that I'm on Hydroxychloraquine. Got blood tests ANA inflammation testing that is how I was finally diagnosed after living with pain for years

Good luck!

[Jodirae]

Hello! I have the same thing and it is quite common with lupus. If you google Livedo Reticularis you will be able to read up on what it is and why you get the blotchy look

[Lisalou19 in reply to Jodirae]

Thank you so much for your reply. I panic when it affects my hands.

[Missnatalie2018]

Any update hun, also pls look at my hand on my profile do u think its the same thing?