Hidden SLE?: Hi brothers; please I'asking wheather... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Hidden SLE?

Vodoo profile image
9 Replies

Hi brothers;

please I'asking wheather there is a hidden type of SLE without the malar rash specially

Written by
Vodoo profile image
Vodoo
To view profiles and participate in discussions please or .
9 Replies
Loopyloo43 profile image
Loopyloo43

Hi, for many years I had no rash so my dx was based on one blood test and symptoms at the time my rash came and is now very evident so it came after time !

custardpot profile image
custardpot

I have Lupus SLE with no rash

Hi dear...the first symptoms of lupus sle is the butterfly rash..and joints pain...my sister one start like that😳😳😳 but i met a girl at my sister clinic yesterday and i asks her alot of question one of it she never had rash on her skin or face like My sister...and she said that because she got her diagnosed very early before she have breakout from rash

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Vodoo ,

Only around one-third of people with SLE will actually present with the classical malar 'butterfly' rash. Therefore, it is not necessary to have this symptom to be diagnosed with lupus.

If you would like more information and advice about getting a diagnosis of lupus, please take a look at our blog article here - lupusuk.org.uk/getting-diag...

Vodoo profile image
Vodoo in reply toPaul_Howard

Thank you so much Sir. I appreciate your concern. Really I haven't met a single case of SLE throughout my long practice. It does happen. When I heard about the so called; hedden SLE as it was said to me, it sounded strange as if it were; a wound without cutting the skin! Having no rapid references here I preferred to ask colleagues. Thank you so much again for concern

milkwoman profile image
milkwoman

I have SLE lupus (diagnosed in 2014) and do not have the malar rash. I tested positive for lupus autoantibodies (markers). I also have Sjogens Syndrome.

Vodoo profile image
Vodoo in reply tomilkwoman

Many thanks for concern. But please! Is "milkwoman" a name or a job?

milkwoman profile image
milkwoman in reply toVodoo

It's just my screen name, just like "voodoo" is yours.

leslieliesel profile image
leslieliesel

I was DX's last summer/fall at age 62...I had No malar rash...I had chest back lower arms and hand horrible rash.....brought out by the sun...and confirmed with biopsy of my rash then further testing...I actually have Subcutate(sp) Lupus.....because I am as my rheumy said..an old white female my Lupus will most likely be mild...

Not what you're looking for?

You may also like...

SLE & 🦷

I am absolutely devastated this morning. My tooth crumbled when I was eating brown bread. I’ve had...

SLE

Hi I have been diagnosed with Lupus for 18months although have been ill for many years. I only...
lucy-may profile image

Sunflower hidden disability

Hi, I wonder if anyone knows how long does it takes to receive the sunflower badge from the lupus...
Melaxx profile image

SLE & Covid

Morning, I’m double vaccinated and got my positive covid result this morning. I have been floored...

PCOS SLE

I am getting to the end of my tether with the entire medical profession I'm sorry to say. I am 69...
New47 profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.