So, I saw the rheumatologist today. To be honest he talked far more than he listened and he didn’t like being asked questions. He’s unwilling to make a diagnosis at this stage. I definitely have a positive ENA and ANA with anti-ro. He’s given me a steroid injection as this helps some people with fatigue. If not we can try the anti-malarial drug (that I can remember the name of) when I see him again in three months time.
I asked about pernicious anemia and the therapeutic trial of B12 I’m on and he said that was between me and the doctor who prescribed it.
So I still don’t know if I have PA although the B12 is helping with some symptoms.
And I don’t know if I have Lupus, Sjögren’s or anything else that is associated with anti-ro.
He reluctantly sent me for kidney tests but only because I raised it.
I mentioned a lack of diagnosis makes it hard with the DWP and he actually said ‘I don’t care about the DWP’ I suppose I only care because how much help I can get is in their hands.
The waiting game is a scary place though isn’t it? And very hard to explain to other people.