I hate lupus

[Tulipano]

How can I start loving myself? I hate my body. Lupus took so much away from me. I have to deal with pain, fatigue and being fat etc everyday. Impossible to love the new me. I just wish I could disappear but I can't because I have children who I love. 😭 I am sorry to moan but I think you're the only people who can understand me.

[PMRpro]

"Impossible to love the new me. I just wish I could disappear but I can't because I have children who I love"

And who love you back I imagine. And who are you to criticise their taste?

Perhaps you need to speak to your GP about having some counselling - because a level of acceptance of where you are in this illness and situation is essential to be able to progress with your life.

[Tulipano in reply to PMRpro]

I have just started counselling xx

[Ianrussell69]

I hate lupus/ ctd especially last night wh3n I was dropping my food bowl and chopsticks continuously last night at a family meal and the fact I new if I got up to go to toilet I would look like Quasimodo and people would be asking you now you’ve been there ,then I looked at my wife and thought I’m lucky try not to let it rule you don’t let it win do what I do blow off steam on the site all the best

[ava97]

Tulipano,u have a children whom u love...that is more for u to live.she/he will understand ur fighht.like u many of us here fighting evryday..but u know sometimes it gives us much relief when u share ur problem..😊😊.I also do this with my mom nd alwz in here.u know dear,I m jzt in the age of grow up my career,my life but this lupus alwz give me new prblm...I cnt evn walk sometimes due to faitigue.I have to cancel my plan at the last moment.I cannot have laughing days..or hanging out with frnds in a sunny day .I have already lost so many friends.so really I hate this...😂😂.but my family and whom I love he is always there for me.so I think I can manage.even after staying at home I m doing good result in exam. u know,☺☺ people like us always feel to cry😖😖 but whenever u feel sad,u try to do something or something which u love to do.or atleast u share ur problem here.u dnt have to talk...jst relief your pain here..lots of us will understand u.

💜💜

[Ianrussell69 in reply to ava97]

Thanks you are right I have a brill family