I Hate Lupus: It is 4:30 am here in Alabama, I have... - LUPUS UK

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I Hate Lupus

Tiras profile image
7 Replies

It is 4:30 am here in Alabama, I have been wide awake and can't sleep since 1:00am.

This happens quite frequently, between Lupus and medication it causes this!

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Tiras profile image
Tiras
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7 Replies
leslieliesel profile image
leslieliesel

I Hate Lupus also

Ianrussell69 profile image
Ianrussell69

When I take a lot of tramadol it keeps me awake and yes lupus / MCTD I hate it

Me too only it’s Sjögren’s in my case! Quite happy to hate Lupus too though on your behalf!Xx

milkwoman profile image
milkwoman

I hate lupus too. And Sjogrens. And Hypothyroidism. And menopause. It all sucks.

Magnesium, Evening Primrose Oil, Benedryl and Unisom help me sleep. No idea why really, but if it works, I'm not changing it!

Hang in there, Tiras!

Flyhook profile image
Flyhook

I go through the same thing regularly.

Cal66 profile image
Cal66

I also hate Lupus it’s ruined not just my life, but also my family’s. You mentioned that you are unable to sleep, have you tried Amitriptyline it helps to relax your muscles pain you then go to sleep, it does take time to get the right dosage & I occasionally alter mine depending on the degree of pain I am in, currently I’m on 35mg but if I am in more pain I take 45mg or if I’m driving a longer journey a few days before & night before, I reduce them to 25mg, if not I get too tired to drive. It may or may not work for you but could try.

Another tablet to try is Melatonin, usually people with ADHD take it to aid their sleep as their body’s don’t produce Melatonin. I’m not saying that you don’t have enough Melatonin, but taking extra might be of some benefit.

Tiras profile image
Tiras in reply toCal66

Thank you for the information!

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