Lupus and Rashes

[MadLadyLisa]

My question is does anyone have little water blisters on there hands that are really soar and very irritating I have Lupus and have not found any one who has these I would love to know if there is anything I can do to help it

[Nerdvana]

I do Lisa, I find that I have them during hot weather and that they can be itchy! This year is surprisingly tamer than last year. I just use hand moisturiser when they begin to irritate me but haven’t had them seen to.

Hope that hand cream or a moisturiser can help!

Best wishes x 💜

[MadLadyLisa in reply to Nerdvana]

Thank you I have tried and unfortunately it didn't help, my blisters are there it seems all the time hot or cold but I do know that if I have them under hot water it's crazy, Thank you

[Nerdvana in reply to MadLadyLisa]

No worries hope you can find out the cause and find a way to get rid of the itching x

[mocidoci]

It could be eczema pompholyx - do the blisters dry up and then the skin peel? I've had it for years but only diagnosed last year after the rheumy referred my to dermatology. Mine is made worse by my two allergens - linalool and nickel. The former is found in anything perfumed and the latter in coins, jewelry etc.

[Frosty1960]

Hi madladylisa, I get something like that are they like little spots that can be very itchy but if you scratch them are very painfull if so have my sympathy, I try treat them with dermovate helps get rid of them, although once had a so called doctor offer to burn them off I couldn't believe my ears, she hardly lifted her head during concultation I gave her peice off my mind and left and seen the receptionist and got her to put on my notes not to give me another appointment with her again. I couldn't get the thought of how painfull it would have been out of my head all day after.

[foxglove]

I have these but on the tip of my nose! I just cover with foundation cream to try to dry. I find moisturisers makes them worse

[copdber]

I do I’d like to show you a photo but not sure how to do this

[Lupusrelative]

My sister suffers from these. She has RA and dermatologist said it was erythema multiforme. You can try to google, see if it is same condition

[Lupusrelative]

Sorry, not sure how to post pic.

[DJK99]

Hello - i had these allover my feet on two occasions .. a little like chicken pox.. very painful and itchy. I was so busy at work I just called the GP and did a phone consult (this is 4yrs back now) and she recommended getting steroid cream which i did. It took months for my feet to look normal again. This it was reaction to sun as both times had been in a hotter country and kept taking my boat shoes off which also took off the factor 50 each time and I didn't think to reapply! Maybe have a look at some Google images on line and see if they look familiar - I think it was bullous lupus and I spoke to my rheumy about it a year or so later and he said it sounded like that. Here is some research on it tht might resonate : dermnetnz.org/topics/bullou...

Best to speak to take photos of all your symptoms and send to your Rheumy pre review - or your GP if not seeing one currently.

All the best and hope you get some support to get this improved. x

[Tykle]

Hi LIsa, I've had a little blister rash on my hands for over 30 years. It's always there and the time of year doesn't seem to make any difference but sometimes worse than others. It can almost completely cover my hands so I have to wear cotton gloves or can go down to just a few blisters. It doesn't matter what time of year it is, changes in temperature & humidity make it worse.

I had biopsies done at St John's institute of dermatology at Thomas' but they couldn't give a diagnoses so (as you so often hear) they put it down to lupus. I am also photosensitive and have have a blistering grape-like rash with that so maybe it's a thing my skin just likes to do.

I've often wondered if it's a circulatory thing as I also have reynauld's. I know it isn't recommended but I find breaking the blisters is the only thing that gives relief and helps them clear up quicker, although you can't do this if they are forming under thicker skin. If I leave them, they just get worse and the skin gets tighter and more painful. Having a really good scratch, then soaking my hands in tepid water and TCP seems to help, although it's a bit smelly! I've got used to it now but am facing my first real difficulty with it now, having open skin on my hands with COVID around!

[unamariposa]

Hi,

Yes my lupus attacks the skin and if I get hot or sun exposure I'm itchy and will get tiny tiny water bumps all over.

I take Hydroxyzine when I get the creepy crawling itchy feeling.

I use Curel lotion the red one, cetaphil soap bar a friend recommended it😊

But when bad I apply

triamcinolone acetonide

also used clobetasol.

I will apply cool water to my skin if out side.

Try to go out early or late in day when cooler less sun.

Try using thin gloves on your hands when driving it helps, my daughter she was not diagnosed with lupus but has psoriasis.

Hope some of these tips help