Got my cannabis oil samples 🙌🏽🍂

[MissFG]

So in need of this right now after my first physio appt Monday and very obvious muscle wastage over the last 4 weeks. Came within 2 days!!!

I’ve just tried the purple paste as it’s later on in the day and I need to relax and am exhausted and in pain. So let’s see if it works. Then the blue oil in the morning. I’m willing to try anything right now.

Thank you to the kind lady posting about CBD Brothers the other day, I’ve been looking for a good quality, legal UK supplier for quite a while 😊

[Lupiknits]

Let me know how it goes. I have some ( from a different UK company recommended here) and am hoping it will help the pain. I had no idea the Govt had made CBT legal.

[ZoeJackdaw]

Please let us know how it goes. I have some from another company and it’s not working for me. Very disappointed as it was sooooo expensive!

[Cas70 in reply to ZoeJackdaw]

I bought a very expensive one at first as I was desperate- have moved on to Jacob Hooey from Holland & Barrett (£20) which is even better and a third of cost. My sister responds to a different one - so think it is trial and error - best of luck

[MissFG in reply to Cas70]

Thank you! I tried the Holland and Barrett and it didn’t do anything. I heard it has a very low quantity of cannabis extract in it also. That’s why I wanted a more purer product. I think we’re all different and what works for one doesn’t work for another.

[Cas70 in reply to MissFG]

Having read up on CBD Bros I am sending for sample - thanks for the heads up - so helpful this website.

[MissFG in reply to Cas70]

The products I have received are really good they taste and smell strong which isn’t nice but a good sign on the content! Thank goodness for this forum 😊

[MissFG]

All ok so far few palpitations but early days yet

[Loraine14]

I’ve never heard of this, does it actually work could be doing with some if it does 😬

[MissFG in reply to Loraine14]

Its proven to work and this company were recommended on this site. Tbh anything is worth a try and there’s lots of evidence in support of using it

[Hidden in reply to MissFG]

Can you post the links to the evidence that it works in Lupus?

Placebo controlled, double blinded studies are the " gold standard " .

[MissFG in reply to Hidden]

For particular info you’d need to research this yourself or ask others on the forum fir their personal experience. I’m specifically using CBD for myosotis as it’s very severe atm and medication isn’t helping with the pain. CBD is a personal choice and sometimes we run out of options with the professionals and will try anything to help ourselves!

[Hidden in reply to MissFG]

Of course using CBD is a personal choice but I do think if you say that there is " a lot of evidence " then you should be able to provide links to it.

Trying anything is different from using something that has a sound evidence base, otherwise you are potentially misleading other people on here.

[Paul_Howard Partner LUPUS UK in reply to MissFG]

Hi MissFG ,

I'm afraid I am not aware of any clinical trials that have proven CBD oil is safe and effective for use in lupus. There have been some trials for other autoimmune conditions but we would always encourage people to discuss this complementary therapy with their doctor first to be advised of any potential adverse reactions or interactions with other treatments. Due to the varied nature of lupus, some people may find it helpful for some symptoms but it may not help, or potentially it could be harmful for others.

[MissFG in reply to Paul_Howard]

I didn’t mention clinic trials I said evidence as in people’s testimonies and personal improvements. As I also have a rare muscle disease where there has been very few trials I can only go by the feedback and opinion of others and their success or unsuccessful experiences. But I appreciate your comments so I can clarify this and if it only helps one or two of us than it is beneficial to post

[Paul_Howard Partner LUPUS UK in reply to MissFG]

Hi MissFG ,

I just wanted to pop on a comment because the phrase 'proven to work' can mean different things to different people. It is great if some people find this helpful and I hope that you will experience some benefit (we look forward to hearing how you get on), but the evidence for this therapy is largely anecdotal at the moment and doesn't necessarily rule-out the placebo affect or other possible variables.

[Wolf1]

How have you got on with your samples? I’ve just ordered xx

[MissFG in reply to Wolf1]

I think they’re good quality. Still early days but let’s just say I’ve just woken up at 11am so think I’ll either take a little less before bed or earlier as I’ve been sleeping like a log. I’ve had a couple of bad dreams as I don’t usually recall dreaming but it could just be a coincidence. So far though so good!