My story

[Elishaannxx]

Aw, well I’ve been poorly ages I have loads of stuff wrong with me as separate thing and all the things I have wrong with me is all in with lupus there all as a whole in lupus and I’ve on 25 tablets a day and I’m 19years old, so I think they will take me off them and give me something for all of them with it being lupus, we knew something wasn’t right and that something was definitely wrong with me as I’m at the doctors every week really poorly and they just put it down to viral infection when it’s not because they don’t know what it is, but this one doctor is really good she diagnosed me with my allergy’s so we went to her and she said lupus straight away after looking at my face and asking me questions so she emailed my immunology specialist and flagged it as emergency and got me an appointment for tomorrow x

[eekt]

Sorry to hear that Leeshalou123...you're right in thinking they will use very specific medication to reduce your symptoms, so we'll be thinking of you tomorrow. Keep posting and BIG HUGS XOX 😚

[Elishaannxx in reply to eekt]

Aw Thankyou so much😘🥰, how are you anyway, have you been diagnosed with lupus xx

[eekt in reply to Elishaannxx]

Yup, SLE based on dsDNA, but I'm a SACQ 🤪...Serologically Active Clinically Quiescent, I've only had the milder symptoms to date while my bloods go up and down, but I do have a unicorn feature 🦄 of inflammation of the nose causing deformity...which my GPs didn't spot! 🤡🤡🤡 xxx

[Elishaannxx in reply to eekt]

Aw really, my face is burning loads because it’s the butterfly rash which is part of the lupus so let’s see what the hospital say tomorrow they will probably refer me to a rheumatologist to do more tests x

[Lili18]

Hi Leeshalou123,

I am so sorry to hear that. Hope tomorrow will go well. Sending you soft hugs

[Elishaannxx in reply to Lili18]

Thankyou means alot❤️xx

[Chanpreet_Walia LUPUS UK]

Hi Leeshalou123,

Welcome to the LUPUS UK HealthUnlocked Community! We offer a free information pack which you can download or request at lupusuk.org.uk/request-info...

How did your appointment go? Did you receive a referral to a rheumatologist?

Please let keep us updated, wishing you all the best.

[Elishaannxx]

I went to my hospital appointment earlier and She said she definitely thinks it’s lupus so I have so I have to go see a rheumatologist and she said my inflammation is really high so she said my joints will be inflamed that’s why I’m getting all this joint pain and stiffness so she said she’s thinks I’ve got rheumatoid arthritis which is linked with lupus aswell and she said my butterfly rash is really bad, so I had to have some more blood tests and wait for an appointment to go see a rheumatologist in Leeds to see what treatment I need xx